Sorry to hear that, Susie. I'm not sure if it could be of any help, but just in case, I wanted to tell you about Rory Cellan-Jones, a well-known British journalist. He lives with Parkinson's for many years, and he regularly shares updates about his condition and treatments on social media, where he is very active. I just randomly googled a couple of his Substack posts https://rorycellanjones.substack.com/p/five-years-with-parkinsons

https://rorycellanjones.substack.com/p/impatient-for-parkinsons-progress

but you can easily find his articles elsewhere. Maybe you've heard of him. He is connected to a community of "Parkies" and a Parkinson society in the UK. Hope you and your husband might find some helpful info from these resources.